{"id":39535,"date":"2026-06-18T21:04:26","date_gmt":"2026-06-18T21:04:26","guid":{"rendered":"https:\/\/stg-www.mccdn.io\/vitals\/?p=39535"},"modified":"2026-06-18T21:25:15","modified_gmt":"2026-06-18T21:25:15","slug":"ellorie-cross-raising-ahc-awareness","status":"publish","type":"post","link":"https:\/\/stg-www.mccdn.io\/vitals\/ellorie-cross-raising-ahc-awareness\/","title":{"rendered":"All in for Ellorie: How one dad is running to raise awareness of his daughter&#8217;s rare condition","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"<p>When you look at Ellorie Cross you\u2019ll see a spunky, smiley little girl. You\u2019re likely to find her playing with her siblings, looking for a dog to pet or cuddling up with her parents to read a book.<\/p>\n<p>She may be a girl of few words, but that doesn\u2019t stop her from sharing her opinion. She\u2019s expressive and determined. She\u2019ll use sign language to ask for more snacks and loves to give sloppy kisses to those she loves.<\/p>\n<p>What you likely don\u2019t see are the daily challenges this strong and resilient little girl overcomes.<\/p>\n<p>She may be tiny, but Ellorie is mighty.<\/p>\n<p>Meet Ellorie and hear from her parents about her first few months of life as the family navigated a complicated medical diagnosis.<\/p>\n<div class=\"wistia_responsive_padding\" style=\"padding:56.25% 0 0 0;position:relative;\">\n<div class=\"wistia_responsive_wrapper\" style=\"height:100%;left:0;position:absolute;top:0;width:100%;\"><iframe loading=\"lazy\" src=\"https:\/\/fast.wistia.net\/embed\/iframe\/mka90ac8uo?web_component=true&#038;seo=true\" title=\"Tiny but mighty Video\" allow=\"autoplay; fullscreen\" allowtransparency=\"true\" frameborder=\"0\" scrolling=\"no\" class=\"wistia_embed\" name=\"wistia_embed\" width=\"100%\" height=\"100%\"><\/iframe><\/div>\n<\/div>\n<p>\u000b<script src=\"https:\/\/fast.wistia.net\/player.js\" async><\/script> <\/p>\n<p>Ellorie was diagnosed with alternating hemiplegia of childhood (AHC) at just 9 months old. AHC is an incredibly rare genetic condition that affects roughly one in a million children worldwide.<\/p>\n<p>The journey to her diagnosis took months, explains Kassi Cross, Ellorie\u2019s mother. Ellorie was evaluated by various specialists including multiple ophthalmologists for her irregular eye movement but was told that all seemed fine. It wasn\u2019t until an eye exam at Mary Bridge Children\u2019s Eye Center in Silverdale when the ophthalmologist recommended she see a geneticist.<\/p>\n<p>That very next step of genetic testing identified AHC.<\/p>\n<p>The condition can cause alternating sides of her body \u2014 or more rarely, her entire body \u2014 to become weak or paralyzed at a moment\u2019s notice, explains Garett Cross, Ellorie\u2019s dad. It can also cause delays in developmental milestones, such as speech or walking, as well as cognitive impairment, seizures, low muscle tone and dystonia (uncontrollable muscle contractions).<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-27671 aligncenter\" src=\"https:\/\/stg-www.mccdn.io\/vitals\/wp-content\/uploads\/sites\/15\/2023\/06\/Foundations-icon.png\" alt=\"Foundations icon\" width=\"144\" height=\"144\" \/><\/p>\n<p style=\"text-align: center;\">Support research into AHC &amp; help children like Ellorie<\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/cureahc.charityproud.org\/Donate\/?cid=27994\">Find out how to help<\/a><\/p>\n<p>AHC is a lifelong condition with no identified cure. Episodes of paralysis can be triggered by nearly anything, Garett explains. She could be triggered by changes in the weather, discomfort, viruses, stomach issues or simply getting too excited.<\/p>\n<p>\u201cIf she giggles too hard, her arms can become paralyzed,\u201d adds Kassi.<\/p>\n<p>With such a rare diagnosis, the family struggled to find someone who knew enough to guide them in the best treatment plan \u2014 until they met <a href=\"https:\/\/www.marybridge.org\/provider\/annie-weisner\/\">Annie Weisner, MD, PhD<\/a>. Dr. Weisner is a pediatric neurologist at MultiCare Mary Bridge Children\u2019s Hospital who studied under one of the only specialists in the country who focuses on AHC.<\/p>\n<p>Kassi and Garett describe that first appointment with Dr. Weisner as a breath of fresh air. They found someone who knew AHC, but more important, who wanted to know Ellorie.<\/p>\n<div class=\"wistia_responsive_padding\" style=\"padding: 56.25% 0 0 0; position: relative;\">\n<div class=\"wistia_responsive_wrapper\" style=\"height: 100%; left: 0; position: absolute; top: 0; width: 100%;\"><iframe loading=\"lazy\" class=\"wistia_embed\" title=\"One in a million Video\" src=\"https:\/\/fast.wistia.net\/embed\/iframe\/s8u5ytq2lf?web_component=true&amp;seo=true\" name=\"wistia_embed\" width=\"100%\" height=\"100%\" frameborder=\"0\" scrolling=\"no\"><\/iframe><\/div>\n<\/div>\n<p><script src=\"https:\/\/fast.wistia.net\/player.js\" async><\/script><\/p>\n<p>Ellorie turned 2 in February and is proving to her parents, doctors and everyone around her just how much she\u2019s capable of.<\/p>\n<p>And while her <a href=\"https:\/\/www.marybridge.org\/\">Mary Bridge Children\u2019s<\/a> care team is extensive \u2014 neurology, nutrition, orthopedics, orthotics, occupational and speech therapy, ENT and endocrinology \u2014 they don\u2019t base their hope for Ellorie\u2019s future on finding a cure but instead all that steps forward she\u2019s taking. Research is still in the early stages for AHC, but that doesn\u2019t mean they\u2019ll stop trying each day to make the world around Ellorie better.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-39536\" style=\"margin: 0px 0px 0px 30px;\" src=\"https:\/\/stg-www.mccdn.io\/vitals\/wp-content\/uploads\/sites\/15\/2026\/06\/Cross-family.jpg\" alt=\"cross family, man, woman and four kids pose for photo in matching shirts\" width=\"375\" height=\"500\" srcset=\"https:\/\/stg-www.mccdn.io\/vitals\/wp-content\/uploads\/sites\/15\/2026\/06\/Cross-family.jpg 768w, https:\/\/stg-www.mccdn.io\/vitals\/wp-content\/uploads\/sites\/15\/2026\/06\/Cross-family-225x300.jpg 225w\" sizes=\"auto, (max-width: 375px) 100vw, 375px\" \/><\/p>\n<p>For this year\u2019s <a href=\"https:\/\/www.soundtonarrows.org\/\">MultiCare Sound to Narrows 12K race<\/a>, Garett ran with that determined Ellorie spirit. With Ellorie riding shotgun in the stroller, her dad is running to raise awareness for AHC and the need for research.<\/p>\n<p>And this won\u2019t be the only time. Garett says he plans to wear his hot pink \u201cAll in for Ellorie\u201d shirt in future races to keep spreading awareness.<\/p>\n<p>Kassi, along with Ellorie\u2019s siblings Berrick (5), Colette (4) and Brennan (3 months), cheered them on the entire way \u2014 just like they do each day for Ellorie and other kids facing complicated medical diagnoses.<\/p>\n<p>\u201cI ask my kids every single night, \u2018What are you grateful for?\u2019 and sometimes they ask me why I want to know,\u201d Garett says. \u201cAnd I tell them because today we get to move our bodies, today we get to go outside and go for a run or to the beach. Your sister doesn\u2019t always get that choice.<\/p>\n<p>\u201cI want to teach my kids, and I would hope others, to show gratitude,\u201d he continues, \u201cand how much of a gift it is, to enjoy it and to appreciate it.\u201d<\/p>\n<div class=\"wistia_responsive_padding\" style=\"padding: 56.25% 0 0 0; position: relative;\">\n<div class=\"wistia_responsive_wrapper\" style=\"height: 100%; left: 0; position: absolute; top: 0; width: 100%;\"><iframe loading=\"lazy\" class=\"wistia_embed\" title=\"All in for Ellorie Video\" src=\"https:\/\/fast.wistia.net\/embed\/iframe\/i6mdyf3708?web_component=true&amp;seo=true\" name=\"wistia_embed\" width=\"100%\" height=\"100%\" frameborder=\"0\" scrolling=\"no\"><\/iframe><\/div>\n<\/div>\n<p><script src=\"https:\/\/fast.wistia.net\/player.js\" async><\/script><\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"<p>When you look at Ellorie Cross you\u2019ll see a spunky, smiley little girl. You\u2019re likely to find her playing with her siblings, looking for a dog to pet or cuddling up with her parents to read a book. She may be a girl of few words, but that doesn\u2019t stop her from sharing her opinion. [&hellip;]<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":115,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[59,67,79,143],"tags":[],"class_list":["post-39535","post","type-post","status-publish","format-standard","hentry","category-events","category-kids-health","category-profiles-stories","category-community-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.6 (Yoast SEO v27.6) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Ellorie\u2019s Story: Life with rare AHC and big hopes for the future - MultiCare Vitals<\/title>\n<meta name=\"description\" content=\"Meet Ellorie, a mighty little girl living with rare AHC. 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